NHS England - Transformation Directorate

Minutes Tuesday 23 November 2021

1.30pm to 3pm

Microsoft teams


Attendees

Name Representing Role
Simon Madden (SM) NHSX Director of Data Policy & COVID Pass Policy Director
Jackie Gray, Deputy Chair (JG) NHS Digital Executive Director of IG
Dr Nicola Byrne (NB) National Data Guardian National Data Guardian for Health and Social Care
Elizabeth Bohm (EB) Health Research Authority Head of Data and AI Policy
Dr Tony Calland (TC) Confidentiality Advisory Group Chair of Confidentiality Advisory Group
Andrew Hughes (AH) Local Government Association (LGA) Director of Health and Wellbeing System Improvement
Ian Hulme (IH) Information Commissioner’s Office Director of Regulatory Assurance
Dawn Monaghan (DM) NHSX Head of IG Policy
Eddie Morris (EM) Academy of Medical Royal Colleges President of the Royal College of Obstetricians and Gynaecologists
Dr Robert Kyffin (RK) Public Health England Data & Information Policy and Partnerships Lead
Ruth Keeling (RK) NHSX Head of Data Strategy
Rachel Merrett (RM) NHSX Head of IG Stakeholder Engagement
Sean Kirwan (SK) NHSX Senior Data Sharing and Privacy Specialist
Noshaba Khan (NK) NHSX Business Support Manager

Apologies

Name Representing Role
Simon Richardson (SR) Care Quality Commission Information Rights Manager
Jen Boon (JB) NHSX Deputy Director, Data Policy

Items

Item
1

Welcome and introductions

The Chair welcomed members to the meeting and the apologies were noted.

2

Minutes and actions from the previous meeting

Minutes: paper 01a

The Panel members and Chair agreed and signed off minutes.

Actions: paper 01b

The actions log was noted by Panel members.

Agenda items for next meeting

Panel members were asked to forward any agenda items for the next meeting on to NK.

3

Pseudonymised data

SK introduced the item on the proposed high level policy of processing of confidential patient information removing identifiers without breaching the common law duty of confidence. The panel approved the paper agreeing to proceed to developing the guidance for the health and care system.

4

Article 40 Codes

JG provided an update on the progress of Article 40 Code of Conduct on Data Sharing for Secondary Uses. As there are a number of pieces of overlapping work in progress, for example, the ICO’s consultation on anonymisation and the task and finish group on data sharing agreements, it was agreed not to progress the work at this time in this existing form.

5

IG related roles

RM provided an update on the work on whether there is clarity in relation to the different IG roles or confusion and overlap between them. Volunteers were interviewed in different IG roles across various sectors to hear directly on what is working well and what could be improved. The Panel supported the next steps as set out in the paper.

6

Comms update

RM introduced the item on the IG portal which is a "on stop shop" for IG guidance, hosting blogs and FAQs as well. The portal was launched in October 2020 and we have now commissioned BritainThinks to undertake some user research of which the findings can be brought to a future panel meeting.

7

Data strategy

RK provided an update on the draft strategy “data saves lives: reshaping health and social care with data," which was published in June and the feedback received with the main themes coming out of the feedback with stakeholders.

8

Routine items

Guidance log

The guidance log was noted by Panel members.

Risk register

The risk register was also noted by Panel members.

9

A.O.B

RK advised that PHE no longer exists and they have been consumed within the UK HSA. NK agreed to review the membership in light of this.

There was no other business.

The panel meeting scheduled on 25 January was cancelled, therefore the next meeting date is 22 March 2022.